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Parent’s Night at the Ritz, Friday, July 10th June 30, 2009

Posted by azautism in Events.
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Please come to the Ritz on July 10th for a parent lead workshop. All presenters are parents of children on the spectrum and have a vast knowledge of issues that affect our population.

Hosts are asking for a $10 donation. Valet parking is free and we will have a lounge set up for relaxing through the evening. So feel free to attend all the lectures or just a few of them.

Sponsored by Specialized Technical Services, Autism Society of America Greater Phoenix Chapter and ACT Today!.

For a full schedule of presenters or to sign up for the event click HERE.
The Ritz Carlton
2401 East Camelback Road
Phoenix, AZ

Steven’s Law Step-by Step Eligibility Questions June 29, 2009

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1. Ask the Company/Human Resources Dept. (HR) for whom you work (where you receive your health benefits/insurance) if the plan your family has is a “Self Insured Plan.” If they tell you “Yes” – you are not eligible for benefits under Steven’s Law. If they tell you “No” go to step # 2.
2. If you do not know or are unsure, ask the HR Department if the company has 50 or more employees. If they tell you “No” than you are not eligible for benefits under Steven’s Law. If they tell you “Yes” go to step #3.
3. Ask the HR Department where/in which state your Insurance Plan is “underwritten.” If your plan has been underwritten in any state other than Arizona you may not be eligible for Steven’s Law.
4. Call your insurance company and ask for “Member Benefits.” Ask if they (Customer Service) are familiar with Arizona’s Steven’s Law/Autism Coverage.If they tell you “No” ask to speak to a Supervisor and ask the Supervisor the same questions.
5. If they tell you “Yes” ask them if your family (your child) is eligible for the benefits under your plan.
6. If they tell you “No” ask them why/what the reason is, and then tell them you want the reason you do not have coverage sent to you in writing.
7. If they tell you “Yes” request a list of “Network or Contracted Providers” or “Preferred Providers” for your area. This will give you all of the agencies and/or individuals who are contracted with your insurance company to provide services outlined by Steven’s Law.
8. Because some Companies have elected to offer this coverage when they are not required to, call your insurance company and ask even if you think you are NOT eligible. If they tell you that you ARE eligible, request it in writing before you make any appointments etc.

Partners in Policymaking June 25, 2009

Posted by azautism in Training.
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Pilot Parents of Southern Arizona

Announces Partners in Policymaking, A FREE Leadership Training for self-advocates & parents of children with disabilities.

Partners in Policymaking is an innovative leadership training program for parents of children with disabilities and for adults with disabilities. The program is designed to provide information, training, resources and skill building to people with a disability and the parents of children with disabilities so that they can become better advocates for themselves or their children. Partners in Policymaking provides participants with opportunities to meet and talk to national and state leaders in the disability advocacy field.

Who Should Apply?

· Young adults (18-30 years of age) with developmental disabilities

· Parents of children with developmental disabilities from ages birth to adulthood

APPLICATION DEADLINE IS JULY 10, 2009

To receive an application call or FAX:

Pilot Parents of Southern Arizona

1-520-324-3150

Toll Free 1-877-365-7220

FAX 1-520-324-3152

Free Autism Training Opportunity June 22, 2009

Posted by azautism in Training.
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The National Autism Conference in Pennsylvania, a premier conference on evidence-based practices for students with autism will be webcasting a number of sessions this year that can be viewed from your computer from August 3-7.  (Note: There is a 3 hour time difference!) The webcasts are free and require no preregistration, unless you are interested in continuing education credits. Credits are available from ASHA and for BCBAs for $300.  More information and all handouts are available at http://azautism.wordpress.com/exchweb/bin/redir.asp?URL=http://www.outreach.psu.edu/programs/Autism/.  

The Arizona Department of Education, Exceptional Student Services will offer a group viewing of 2 sessions of the conference at  the ADE Phoenix office at 1535 W. Jefferson on Tuesday, August 4, and Thursday, August 6 from 10:00-2:00. Each session includes the webcast presentation followed by 30 minutes for discussion/networking.  Pre-registration is required through the ADE Calendar of Events by August 1, 2009: http://www.ade.az.gov/onlineregistration/calendar/RenderCalendar.asp.  Handouts will not be available at the event. They must be downloaded by each participant prior to the session at http://www.outreach.psu.edu/programs/Autism/.

 

     
Tuesday

August 4

10:00 AM- 2:00 PM

 

Autism/ Evidence-Based Strategies for Effective Early Intervention Programs

Jim Ball

 

Session to be webcast from the National Autism Conference in Pennsylvania followed by an opportunity for discussion and networking. This presentation will discuss systematic techniques for working with children with autism, focusing on teaching specific skills, enhancing motivation, and generalization training.

Participants must download and print handouts for session # 26 prior to the session at http://www.outreach.psu.edu/programs/Autism/

     
Thursday

August 6

10:00 AM- 2:00 PM

Autism/Preventing and Managing Behavioral Crisis

David Lennox

 

Session to be webcast from the National Autism Conference in Pennsylvania followed by an opportunity for discussion and networking. This session will review traditional crisis management approaches, as well as contributions from behavior-analytical research and practices for preventing and managing crises.

Participants must download and print handouts for session # 65 prior to the session at http://www.outreach.psu.edu/programs/Autism/

     

Join Find A Cure Panel for Autism Research and Help Support Arizona Autism Coalition June 9, 2009

Posted by azautism in Fundraiser.
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We are excited to announce an affiliation with Find A Cure Panel where people with Autism and their caregivers can participate in quantitative online research designed specifically for them. For every survey completed by those who register, Find A Cure Panel will donate a minimum of $25 to Arizona Autism Coalition. You can complete the two minute profile, by clicking below:

http://member.assistyourteamsurveys.com/aytsreg.aspx?AID=206  

This is a great way for you to impact the development of future treatment for Autism while supporting Arizona Autism Coalition.

Legislature Passes Special Session Bill for Disabled, Foster Children May 29, 2009

Posted by azautism in News.
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The Arizona Legislature has passed House Bill 2001 and is now waiting to be signed by Governor Brewer. The legislation establishes a tax credit for corporate contributions or insurance premiums to a school tuition organization that provides scholarships for children in the foster care system or students with disabilities. It addresses current and eligible students in the voucher program signed by Gov. Napolitano in 2006 but deemed unconstitutional in March 2009 by the Arizona Supreme Court. To view a copy of the passed bill, click here.

A Time of Service Kick-Off Event May 27, 2009

Posted by azautism in Events.
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Who:  This is a chance for community members to come together to give back to their communities. In partnership with the Governor’s Council on Developmental Disabilities, the Self Advocacy Coalition of Arizona, the ARC of Arizona and other stakeholders, individuals with disabilities throughout the state have developed a year-long initiative that will begin at this event, and will identify opportunities to lead efforts to support their neighbors in these tough economic times.

When: Saturday, June 27, 2009 – ALL DAY

PLEASE NOTE:  If a service opportunity in your area does not exist below, please consider making a few phone calls to agencies in your community (food banks, homeless shelters, domestic violence shelters, libraries, animal shelters, etc.) and setting up a volunteer opportunity for Saturday as well! You can participate…even if there is not a formal event in place in your area that day! Please let us know if you do secure an opportunity in your area, so that we can add it to the list below.

MORE OPPORTUNITIES WILL CONTINUE TO BE POSTED AT http://onecommunityaz.ning.com

TIME & LOCATIONS:

9:00am – 12:00pm, First Baptist Church, 1916 N. Frank Reed Road, Nogales, Arizona 85621
(Activities Include: Clean-Up & Set-Up for Youth Summer Camp)
ALL DAY, Camp Colley, Mogollon Rim Area, Outside Payson, Arizona

7:00am – 10:00am, Phoenix Rescue Mission, Family Outreach Center, 1468 N. 26th Avenue, Phoenix, Arizona 85009, (Activities include: Assembling food boxes, guiding food box recipients through the line & process, assisting with moving boxes to recipients cars, etc.)

9:00am – 12:00pm, a new leaf – La Mesita Family Homeless Shelter, 2254 W. Main Street, Mesa, Arizona 85201, (Activities include: Accepting donations from public, sorting food & clothing items, interacting with families onsite that are in need of these items, etc.)

9:00am – 12:00pm, Nogales Community Food Bank, 284 E. Baffert Drive, Nogales, Arizona 85621, (Activities include: Assembling food boxes, guiding food box recipients throgh the line & process)

1:00pm – 2:00pm, Cottonwood Village Assisted Living, 201 E. Mingus Ave., Cottonwood, AZ 86326, (Activities include: Spending time with senior residents, etc.)

2:30pm – 4:00pm, St. Luke’s Home, 615 E. Adams, Tucson, Arizona 85705, (Activities to include social activities with residents)

Other Statewide Locations To Be Announced

Also, on Sunday, June 28, 2009:

5:30pm – 7:30pm, Lake Havasu City Aquatic Center, 100 Park Avenue, Lake Havasu City, Arizona, (Activities Include: Set-Up, Meet & Greet, Community Dinner, etc.)

Please help us spread the word to your friends, family and colleagues. It takes the support of everyone to support the communities we live in during these tough times! Stay tuned to the “One Community” blog that is sponsored by the Governor’s Council on Developmental Disabilities for more information at http://onecommunityaz.ning.com

DDD Provider Rate Cut Notice May 16, 2009

Posted by azautism in News.
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Please click here to view a notice from the Arizona Department of Economic Security, Division of Developmental Disabilities regardiing a cut in provider rates.

US House Introduces Autism Treatment Acceleration Act of 2009 May 15, 2009

Posted by azautism in News.
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Autism Speaks, the nation’s largest autism science and advocacy organization, today applauded Representatives Mike Doyle (D-PA), Chris Smith (R-NJ), Eliot Engel (D-NY), and Hank Johnson (D-GA) for their introduction of a House companion bill to the Senate’s Autism Treatment Acceleration Act (ATAA), which was introduced last month by Senators Richard Durbin (D-IL), Robert Casey (D-PA), and Robert Menendez (D-NJ). Like the Senate version, the House version of the ATAA (H.R. 2413) is comprehensive federal legislation that addresses several critical challenges facing the autism community, including increased funding for scientific research, treatment and services. The ATAA incorporates provisions from the Expanding the Promise of Individuals with Autism Act (EPIAA), originally proposed by Representatives Doyle, Smith, Engel, and former-Representative Chip Pickering.

As in the Senate’s ATAA bill, a key section of the House bill requires all insurance companies to provide coverage for the diagnosis and treatment of autism spectrum disorder (ASDs), including coverage of Applied Behavior Analysis (ABA) therapy – a medically-necessary, evidence-based autism treatment. While the number of states that have enacted comprehensive autism insurance reform legislation has grown to ten, most state insurers are still allowed to specifically exclude coverage for these critical services, which can cost upward of $50,000 a year – well beyond the means of most families.

The House version of the bill also addresses the unique needs of adults with ASDs, creating a demonstration project with one-year planning grants and multi-year implementation grants for the provision of service for adults with autism. In addition, it creates the Network for Autism Spectrum Disorders Research and Services aimed at accelerating the dissemination and utilization of critical, new information, moving it from “bench to bedside” as quickly as possible.

Now Help US Get ATAA Passed!:
1. CONTACT YOUR FEDERAL REPRESENTATIVE! Urge him/her to become a cosponsor of the ATAA bill, H.R. 2413.

> Call your Representative’s office and let him/her know that you support the ATAA bill, H.R. 2413, and you want your Representative to become a cosponsor today. Click here to find the name and phone number for your federal Representative!

> Send an email to your Representative! Autism Votes has written part of the email message for you. All you need to do is fill in the empty box with your story about your family’s experience with autism and how the ATAA bill will help. Click here to send an email to your Representative!

2. STAY INFORMED ON THE ATAA BILL! Sign up to receive Autism Votes email alerts and stay informed on the progress of the ATAA bill.

3. FORWARD THIS EMAIL TO FRIENDS AND FAMILY! Get your friends and family involved in getting the ATAA bill passed.

For a complete summary description of both the House and Senate ATAA bills, visit our website at www.AutismVotes.org/ATAA.

Family Cost Participation Proposal for AzEIP May 5, 2009

Posted by azautism in News.
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Each year DES/AzEIP applies to the federal government for federal funds and makes certain assurances that it will follow the Individuals with Disabilities Education Act (IDEA). This year DES/AzEIP has included a proposal to create family cost participation.

Under the Family Cost Participation (FCP) DES/AzEIP proposes to begin charging families that make over 200% of the federal poverty level ($44,400 for a family of 4), 15% of th e costs of their child’s services. According to the proposal the charges will increase in increments of 5% until they reach 100% of the costs of the child and family’s early intervention services. According to the IDEA states must make families aware of all of the costs they may incur when using a states early intervention system. Arizona already charges a family’s private insurance for their AzEIP services, though this is not mentioned in the FCP. The recent budget cuts have meant that families who use Children’s Rehabilitative Services for their early intervention services are being asked to pay out-of-pocket for any costs left after their private insurance pays—this is not in the FCP. The legislature has a proposal to use Means Testing—in other words to charge families receiving DDD services (ALTCS or state-only)—this is not mentioned in the FCP.

Inequitable
Families who receive early intervention services through the Arizona State Schools for the Deaf and the Blind (A SDB) will not be asked to pay the FCP.

Families who live in hard to serve areas will pay more than families in metro Phoenix or Tucson. It is hard to find providers in areas like Yuma, Apache County, Navajo County and the like—DES/AzEIP pays them more (up to 50% more) than providers in Tucson and Phoenix. Families in these areas would then be charged more based on the increased amounts paid to their providers to come to their area. Other providers negotiate their rates, they are higher than the published rates, so those families will be asked to pay more.

Needy will pay more
The FCP is tied to the state’s cost of providing services, thus those families with children with multiple disabilities, high service needs, or multiple children with disabilities will pay more. A recent study, referred to the “chilling hardships” experienced by families who made up to four times the poverty level. The families studied in 2002, reported that they o ften have to skip meals, delay mortgage or rent payments. http://www.medicalnewstoday.com/articles/118595.php

The Early intervention system is an essential partner as families learn how to help their child with a disability. It is important to share how this proposal might affect your family, how you might make different decisions about your child’s IFSP if you would incur such costs and what benefits your family has received from the early intervention.

The first public hearing will be held May 8, 2008 at AZ Department of Transportation 1130 North 22nd Ave, Phoenix, AZ 85009 from 2:30 to 4:30pm